Summary
Background: This paper reports results from a study examining disability-related services at the family level. Method: We used descriptive statistics to examine (a) the types of disability-related family services families used, (b) how well family services met their needs, (c) the types of family services needed but not received, and (d) families’ perceptions of their knowledge of disability-related family services. Results: Families were mostly satisfied with the services they received; however, about 25% of the sample indicated that a few family services, such as respite, sibling support groups, and parent support groups, were needed but not received. Families were also slightly less satisfied with their knowledge of family services as compared to their ability to request services. Conclusions: Families identified specific services to meet the needs of all of their family members; however, their family support needs are not always being adequately addressed by current programs. Initial assessments should be used to match family services to family needs, and follow-up consultations would help to ensure that the services received result in improved family quality of life.
Citation
Zuna, N., Gracia, M., Haring, S. H., Aguilar, J. M. (2016). Parental Perceptions and Satisfaction with Family Services in Families of Children with Autism Spectrum Disorder and Other Developmental Disabilities. Journal of Intellectual and Developmental Disability, 41, 10-Jan. doi:10.3109/13668250.2016.1179272